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Measuring Lifelong Multimorbidity with Patient Perspectives: Implementing and Visualizing the Cumulative Burden Methodology Across Cohorts
Organization ST. JUDE CHILDREN'S RESEARCH HOSPITALLocation MEMPHIS, UNITED STATESPosted 11 Mar 2022Deadline 28 Feb 2026 ⚠️
NIHUS FederalResearch GrantFY20250-11 years old21+ years oldAccountingAddressAdoptionAdultAdult HumanAdvocacyAffectAgeCaringCatalogsCausalityChildChild YouthChildhoodChildhood Cancer TreatmentChildren (0-21)ChronicClinicalClinical OncologyCohort StudiesComplexConcurrent StudiesConsolidated Framework for Implementation ResearchConsolidated Framework for Implementation ScienceConsolidated Framework for Implementing ChangeDataDissemination and ImplementationEnsureEpidemiologic MethodologyEpidemiologic MethodsEpidemiologic ResearchEpidemiologic StudiesEpidemiologic research methodologyEpidemiologic research methodsEpidemiological MethodsEpidemiological StudiesEpidemiological TechniquesEpidemiologyEpidemiology ResearchEtiologyEventFrequenciesFutureGoalsHb SS diseaseHbSS diseaseHealthHealth Care ProvidersHealth PersonnelHealth PolicyHealth ServicesHealth system plansHemoglobin S DiseaseHemoglobin sickle cell diseaseHemoglobin sickle cell disorderHigh PrevalenceIncidenceIndividualIndividualized risk predictionInterventionInvestigatorsLifeLife CycleLife Cycle StagesLong-Term SurvivorshipMeasuresMethodologyMethodsMethods EpidemiologyMethods in epidemiologyMorbidityMorbidity - disease rateOn-Line SystemsOnline SystemsOutcomeOutcomes ResearchOutputPathologyPatient Outcomes AssessmentsPatient Reported MeasuresPatient Reported OutcomesPatientsPatternPediatric Cancer TreatmentPediatric cohortPersonal SatisfactionPoliciesPolicy MakerPopulationPredicting RiskPrevalencePreventionProcessPublishingRecurrenceRecurrentResearchResearch DesignResearch PersonnelResearch PriorityResearch ResourcesResearchersResourcesRiskRisk FactorsSaint JudeSaint Jude Children's Cancer CenterSaint Jude Children's Research HospitalSeveritiesSickle CellSickle Cell AnemiaSocietiesSt. JudeSt. Jude Children's Cancer CenterSt. Jude Children's Research HospitalSt. Jude Children's Research Hospital Comprehensive Cancer CenterSt.Jude Children's Cancer CenterSt.Jude Children's Research HospitalSt.Jude Children's Research Hospital Comprehensive Cancer CenterStudy TypeSubgroupTestingTherapeuticTimeVariantVariationVisualVisualizationVisualization softwareVulnerable PopulationsWeightWorkadulthoodagesanalytical toolcatalogcausationchildhood cancer survivorchronic mental illnessclinical careclinical decision-makingclinical relevanceclinically relevantco-morbidco-morbiditycohortcomorbiditydesigndesigningdevelop softwaredeveloping computer softwaredisease causationepidemiologicepidemiologic investigationepidemiologicalepidemiology studyforecasting riskhealth care personnelhealth care policyhealth care workerhealth providerhealth related quality of lifehealth workforceimplementation scienceimprovedindividual patientindividualized predictionsinnovateinnovationinnovativeinsightinterestkidslife coursemedical personnelmultidisciplinarymultimorbiditymultiple chronic conditionsnovelonline computerpediatricpediatric cancer survivorpersistent mental illnesspersonalized predictionspersonalized risk predictionpredict riskpredict riskspredicted riskpredicted riskspredicting riskspredictive riskpredicts riskprospectiveresearch studyresponserisk predictionrisk predictionsserious mental disorderserious mental illnesssevere mental disordersevere mental illnesssickle RBCsickle cell diseasesickle cell disordersickle diseasesickle erythrocytesickle red blood cellsicklemiasoftware developmentstudy designtooltreatment planningtreatment providervisualization toolvulnerable groupvulnerable individualvulnerable peopleweb basedweightswell-beingwellbeingyoungster
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PROJECT SUMMARY/ABSTRACT
Background: Multimorbidity, defined as the co-occurrence of two or more physical or mental chronic illnesses,
is prevalent and rising globally. New measures of multimorbidity that provide unique insights into the spectrum,
pattern and magnitude of multiple co-morbid conditions are needed. Current measures fail to provide…
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