grant
Linking State Medicaid and Congenital Heart Surgical Registry Data: Building Capacity to Assess Disparities in Longitudinal Outcomes and Value for Children with Congenital Heart Disease
Organization ICAHN SCHOOL OF MEDICINE AT MOUNT SINAILocation NEW YORK, UNITED STATESPosted 5 Jan 2020Deadline 30 Jun 2030
NIHUS FederalResearch GrantFY20250-11 years old21+ years oldActive Follow-upAdultAdult HumanAffectBirth CentersBirth DefectsBirthing CentersCardiacCardiac MalformationCardiac SurgeryCardiac Surgery proceduresCaringCensusesCessation of lifeCharacteristicsChildChild YouthChildren (0-21)Chronic DiseaseChronic IllnessClinicalColoradoCongenital AbnormalityCongenital Anatomical AbnormalityCongenital Cardiac DefectsCongenital DefectsCongenital DeformityCongenital Heart DefectsCongenital Heart SurgeryCongenital MalformationCountryDataData BasesDatabasesDeathDiagnosticDisparitiesDisparityEconomic IncomeEconomical IncomeEconomicsFamilyHealthHealth CareHealth Care SystemsHealth Care UtilizationHealth ServicesHealth Services EvaluationHealth Services ResearchHeartHeart MalformationHeart Surgical ProceduresHigh PrevalenceIncomeInfluentialsInpatientsInsurance CarriersInsurersInvestigatorsKnowledgeLeadershipLife CycleLife Cycle StagesLinkLive BirthLow incomeMassachusettsMeasuresMediatingMediationMedicaidMedical Care ResearchNegotiatingNegotiationNeighborhoodsNetwork AnalysisNew YorkOperative ProceduresOperative Surgical ProceduresOutcomeParentsPathway AnalysisPatient outcomePatient-Centered OutcomesPatient-Focused OutcomesPatientsPhysiciansPopulationPostoperativePostoperative PeriodProviderPublic HealthRegistriesResearchResearch PersonnelResearch ResourcesResearchersResourcesRisk AdjustmentRisk AssessmentSeverity of illnessSurgeonSurgicalSurgical InterventionsSurgical ProcedureSurvivorsSystemTexasTimeUnited StatesVariantVariationabnormal heart developmentaccess differencesactive followupacute careadulthoodcare costscare delivery sitechronic disorderclinical centerclinical riskcongenital cardiac abnormalitycongenital cardiac anomaliescongenital cardiac diseasecongenital cardiac disordercongenital cardiac malformationcongenital cardiac surgerycongenital heart abnormalitycongenital heart anomalycongenital heart diseasecongenital heart disordercongenital heart malformationcongenital heart operationdata basedata registrydata resourcedemographicsdifferences in accessdisease severityeconomicexperiencefetalfollow upfollow-upfollowed upfollowuphealth and care deliveryhealth care deliveryhealth care service usehealth care service utilizationhealth delivery systemshealth services deliveryheart surgeryimprovedimproved outcomeincomesindexinginnovateinnovationinnovativekidslife courselife year lossmortalitymultidisciplinaryparentpatient oriented outcomespediatric cardiologistpopulation basedpregnantprenatalprovider networksruralityservices researchsurgerysurgery outcomesurgical outcomeunbornyears of life lostyoungster
Description preview
Congenital heart defects are the most common birth defects managed in the United States, affecting 1% of live births. Survivors often describe significant, chronic disease. Yet, limited longitudinal data exist. Further, income and other demographics are associated with ~20% variation in mortality, even after controlling for clinical risk and…
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