grant

Identifying Unmet Needs Driving Disproportionate and Avoidable Nursing Home Placements among Black and Latino Persons Living With Dementia

Organization NEW YORK UNIVERSITYLocation NEW YORK, UNITED STATESPosted 30 Sept 2021Deadline 31 Aug 2026
NIHUS FederalResearch GrantFY2025AD related dementiaADRDAddressAgingAlzheimer's and related dementiasAlzheimer's dementia and related dementiaAlzheimer's dementia or related dementiaAlzheimer's disease and related dementiaAlzheimer's disease and related disordersAlzheimer's disease or a related dementiaAlzheimer's disease or a related disorderAlzheimer's disease or related dementiaAlzheimer's disease related dementiaAmentiaAssessment instrumentAssessment toolAutomobile DrivingBlackBlack PopulationsBlack groupBlack individualBlack peopleBlack raceBlacksCOVID-19CV-19Care ManagerCaringCase ManagerCognitive DisturbanceCognitive ImpairmentCognitive declineCognitive function abnormalCommunitiesCoronavirus Infectious Disease 2019DataDecrease disparityDementiaDiscipline of NursingDisparateDisparitiesDisparityDisturbance in cognitionDoctor of PhilosophyEconomic IncomeEconomical IncomeEnvironmentEthnic OriginEthnicityEvaluationFaceFamilyFutureGeriatric NursingGerontological NursingGerontologyGoalsGroups at riskHealth Care CostsHealth Care SystemsHealth CostsHealth PolicyHomeHospitalsImpaired cognitionIncomeInterviewInvestigatorsJasmineJasminumKnowledgeLatinoLatino PopulationLatino groupLatino individualLatino peopleLatinosLiving WillsLong-Term CareLower disparityMedicalMentorsMethodsMinorityMorbidityMorbidity - disease rateNeeds AssessmentNew YorkNurse PractitionersNursingNursing FieldNursing HomesNursing ProfessionOlder PopulationPeople at riskPersonsPersons at riskPh.D.PhDPoliciesPolicy DevelopmentsPolicy MakerPopulationPopulations at RiskPositionPositioning AttributePrevalencePsychometricsQOCQuality of CareRaceRacesResearchResearch DesignResearch MethodologyResearch MethodsResearch PersonnelResearch ResourcesResearchersResourcesRiskSamplingServicesSocial Support SystemStructureStudy TypeSupport SystemSurvey InstrumentSurveysTechniquesTestingTrainingTranslatingUniversitiesVulnerable PopulationsWorkaccess disparitiesaccessibility disparitiesage in placeaging in placecare deliverycare givingcare partnercareercaregivingcaregiving partnercognitive dysfunctioncognitive losscollegecollegiatecommunity livingcommunity settingcoronavirus disease 2019coronavirus disease-19coronavirus infectious disease-19costdesigndesigningdevelop therapydisparities in accessdisparity eliminationdisparity reductiondrivingelderly nursingeliminate disparitieseliminating disparitiesevidence baseexperienceextended carefacesfacialfeasibility testinggerontologichealth care policyhigh riskhomesincomesinequality in accessinequity in accessinequity in accessibilityinfection riskinformantinnovateinnovationinnovativeinstrumentintervention developmentleadership developmentliving willmethod developmentmitigate disparitymortalitynursing homeolder adultolder adulthoodolder groupsolder individualsolder personperson centeredpilot testpolicy recommendationpreferencepreventpreventingprofessorprogramsracialracial backgroundracial originrecommendation for policyreduce disparityreduction in disparityresearch and methodsstudy designtherapy developmenttreatment developmentvulnerable groupvulnerable individualvulnerable people
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Full Description

PROJECT SUMMARY/ABSTRACT
The disproportionate rise in nursing home (NH) use among Black and Latino persons living with dementia

(PLWD) reflects the inadequacy of existing programs and policies to support aging in place for the most

vulnerable. Enabling aging in the community and preventing avoidable NH placements is widely considered a

priority by federal, state, and local entities along with families and older adults. Yet, it is unclear what is needed

to support Black and Latino PLWD to remain in the community. While there are many plausible next steps to

addressing this poorly understood problem, developing an instrument to identify which unmet needs are

disproportionately driving avoidable NH placements is an important actionable step in reducing disparities among

Black and Latino PLWD. The objectives of this 5-year proposed project are to 1) develop and test the feasibility,

acceptability, reliability, and validity of an assessment instrument aimed at addressing the unmet needs that

drive Black and Latino PLWD to experience avoidable NH placements at greater rates than their White

counterparts using an exploratory sequential mixed methods research design, and 2) translate preliminary

findings onto the public agenda as a policy issue. Aim 1 will use qualitative interviews to describe the unmet

needs driving these placements. An integrative analysis of qualitative findings derived from Aim 1 will inform an

unmet needs assessment instrument, IN-HOME (Identifying Needs to Help Older adults Maintain Everyday

community living), that will be developed, refined and piloted in Aim 2 and psychometrically tested in Aim 3.

Preliminary findings from this study will be used to generate actionable, evidence-based policy recommendations

to address disparities in NH placements. Aligned with NIA’s strategic priorities to address disparities experienced

by minority older adults with Alzheimer’s Disease or Related Dementias (ADRD), this study will form the basis

for a subsequent R01 that will tailor IN-HOME for community-dwelling Black and Latino PLWD and investigate

which actionable unmet needs place them at greatest risk for NH placements.

The candidate, Dr. Jasmine Travers, PhD, MHS, is a gerontological nurse practitioner and assistant

professor at New York University (NYU) Rory Meyers College of Nursing. The long-term goal of Dr. Travers is

to build an independent research career focused on developing innovative approaches to eliminate disparities

in access to and quality of person-centered long term care experienced by Black and Latino PLWD through the

use of mixed methods. Under a team of exemplary mentors and scientific advisors with expertise in gerontology,

ADRD, mixed-methods, policy, survey design, and psychometric evaluation, Dr. Travers will build on her

preliminary work on disparities in access to community long-term care to accomplish training goals in primary

research involving vulnerable PLWD, mixed methods, policy, and leadership development. NYU provides an

exceptional environment for the completion of the proposed research and for Dr. Travers who has already begun

to emerge as a leading disparities researcher in the field of aging and long-term care.

Grant Number: 5K76AG074922-05
NIH Institute/Center: NIH

Principal Investigator: Jasmine Altizer

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