grant
Health-Related Quality of Life Among Adolescents and Young Adults Living with Chronic Hepatitis B: An Exploration of Family Context and Stigma
Organization JOHNS HOPKINS UNIVERSITYLocation BALTIMORE, UNITED STATESPosted 1 Dec 2025Deadline 30 Jun 2028
NIHUS FederalResearch GrantFY20250-11 years old12-20 years old21+ years oldAIDS VirusAcquired Immune Deficiency Syndrome VirusAcquired Immunodeficiency Syndrome VirusAdherenceAdolescenceAdolescentAdolescent YouthAdolescent and Young AdultAdultAdult HumanAfricanAnthropologyAsiaBiometricsBiometryBiostatisticsCaringChildChild HealthChild YouthChildhoodChildren (0-21)ChronicChronic DiseaseChronic Hepatitis BChronic IllnessCohort StudiesCommunicationConcurrent StudiesCountryData CollectionData SetDecision MakingDedicationsDegree requirementsDevelopmentDiagnosisDisclosureDiseaseDisease ManagementDisorderDisorder ManagementEmotionalFaceFamilyFamily HealthFamily health statusFilmFoundationsGeneralized GrowthGraduation requirementsGrowthHBVHBV diseaseHIVHealthHealth CareHealth Care ProfessionalHealth Care ProvidersHealth PersonnelHealth ProfessionalHealth PromotionHepBHepatic DisorderHepatitis BHepatitis B VirusHepatocarcinomaHepatocellular CarcinomaHepatocellular cancerHepatologyHepatomaHuman Immunodeficiency VirusesIndividualInformation DisclosureInterviewInvestigationInvestigatorsJudgmentKnowledgeLAV-HTLV-IIILiver Cells CarcinomaLiver diseasesLong-Term CareLymphadenopathy-Associated VirusManaged CareMedicalMedicineMentorsMentorshipMethodsModificationNICHDNational Institute of Child Health and Human DevelopmentNatural HistoryNorth AmericaOrganizational GoalsOrganizational ObjectivesOutcomeParentsParticipantPediatric cohortPerceptionPersonal SatisfactionPersonsPh D studentPh D. studentPh. D. studentPh.D studentPh.D. studentPhD studentPhD. studentPhasePreventionPrimary carcinoma of the liver cellsProcessPublic HealthPublic Health SchoolsQuestionnairesReportingResearchResearch PersonnelResearchersRiskRisk FactorsRouteSalutogenesisSecrecyShapesSiteSocial isolationSolidStep retrainingStep trainingStrategic PlanningStructureTissue GrowthTrainingTranslational ResearchTranslational ScienceTransmissionVertical TransmissionViral Hepatitis BViral hepatitisVirus-HIVVisualWorkWorld Health OrganizationYouthYouth 10-21adolescence (12-20)adolescent healthadult youthadulthoodadulthood transitioncareerchild patientschronic HBV infectionchronic disorderchronic hepatitis B infectionchronic hepatitis B virus infectionchronic infections with hepatitis B viruschronically infected with HBVchronically infected with hepatitis Bcohesiondata integrationdata visualizationdevelopmentaldoctoral studentempowermentexperienceextended carefacesfacialfamily structurehealth care personnelhealth care workerhealth providerhealth related quality of lifehealth workforcehep Bhepatic diseasehepatitis B virus diseasehepatitis virus infectionhepatopathyimprovedinnovateinnovationinnovativeinsightjuvenilejuvenile humankidslife-time risklifetime riskliver carcinomaliver disordermedical personnelnovelontogenyparentpediatricpediatric patientspoor health outcomepromoting healthpsychologicpsychologicalrecruitreduced health outcomesocialsocial competitionsocial stigmasocio-demographicssociodemographicsstemstigmatransition from adolescence to adulthoodtransition into adulthoodtransition to adulthoodtranslation researchtranslational investigationtransmission processtreatment providerwell-beingwellbeingworse health outcomeyoung adultyoung adult ageyoung adulthoodyoungsteryouth age
Description preview
PROJECT SUMMARY
Children living with chronic hepatitis B (CHB) must actively manage their disease throughout their lifetime due
to the risk of progressive liver disease and hepatocellular carcinoma. Their transition to adult care complicates
care management and typically occurs during adolescence and young adulthood, when health-related quality of…
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