grant

Harnessing the EHR for the Delivery of Supportive Care in an Oncology Setting

Organization UNIVERSITY OF CALIFORNIA LOS ANGELESLocation LOS ANGELES, UNITED STATESPosted 5 Mar 2021Deadline 28 Feb 2027
NIHUS FederalResearch GrantFY2025AcuteAddressAdoptionAlgorithmsAmbulatory Care FacilitiesAssessment instrumentAssessment toolAttentionBehaviorCancer PatientCancer SurvivorCancer TreatmentCancersCareer Development AwardsCareer Development Awards and ProgramsCareer Development Programs K-SeriesCaringChronicClinicClinicalClinical InformaticsCollectionCommunicationComplexContinuity of CareContinuity of Patient CareContinuum of CareDataDetectionDevelopmentDiagnosisDiseaseDisorderDocumentationEHR systemEarly identificationElectronic Health RecordElectronicsElementsEligibilityEligibility DeterminationFaceFatigueFutureGoalsGuidelinesHNC patientHead and Neck CancerHead and Neck CarcinomaHealthHealth Care SystemsInfrastructureInstitutionInterventionK-AwardsK-Series Research Career ProgramsLack of EnergyLinkMalignant Head and Neck NeoplasmMalignant Neoplasm TherapyMalignant Neoplasm TreatmentMalignant NeoplasmsMalignant TumorManaged CareMeasurableMental DepressionMentorshipMethodsMissionMorbidityMorbidity - disease rateNCI OrganizationNational Cancer InstituteOncologyOncology CancerOutcome MeasureOutpatient ClinicsPainPainfulPathway interactionsPatient CarePatient Care DeliveryPatient Outcomes AssessmentsPatient Reported MeasuresPatient Reported OutcomesPatient outcomePatient-Centered OutcomesPatient-Focused OutcomesPatientsPhasePopulationProcessProtocolProtocol ScreeningProtocols documentationProviderQOLQuality of lifeRecommendationReportingResearchResearch Career ProgramResearch ResourcesResourcesStructureSupportive TherapySupportive careSymptom BurdenSymptomsSystemTimeTrainingUnited Statesalleviate symptomameliorating symptomanti-cancer therapybarriers to implementationcancer carecancer diagnosiscancer therapycancer-directed therapycare deliverycare for patientscare of patientscaring for patientsclinical implementationclinical practiceclinically actionablecost effectivenessdecrease symptomdepressiondesigndesigningdevelopmentaldissemination triale-HealtheHealtheffectiveness validationelectronicelectronic deviceelectronic healthelectronic health care recordelectronic health medical recordelectronic health plan recordelectronic health record systemelectronic health registryelectronic medical health recordevidence baseexperiencefacesfacialfewer symptomshead and neck cancer patienthead/neck cancerimplementation barriersimplementation challengesimplementation scienceimplementation trialimprove symptommalignancymalignant head and neck tumormanage symptommeasurable outcomemortalitymultidisciplinaryneoplasm/cancernew approachesnovelnovel approachesnovel strategiesnovel strategyoutcome measurementoutpatient programsoutpatient servicespathwaypatient oriented outcomespatient-clinician communicationpatient-doctor communicationpatient-provider communicationphysical symptompilot testpoint of carepragmatic randomized trialpreventpreventingprogramspsychological symptomreduce symptomsrelieves symptomsresponsesymptom alleviationsymptom improvementsymptom managementsymptom reductionsymptom reliefsymptomatic improvementtime usetooluser centered designvalidate effectiveness
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Full Description

Project Summary
Symptom management and supportive care are essential to high-quality cancer care and optimal patient

outcomes, but many barriers exist to their integration in routine oncology settings. Despite the availability and

cost-effectiveness of validated symptom assessment tools, evidence-based supportive care interventions and

clinical guidelines, adoption of supportive care using patient-reported outcomes in clinical practice remains low,

leaving many patients with poor symptom control, unmet needs, and preventable suffering. Patient-reported

outcomes offer one approach to symptom assessment by capturing the unique needs and values of each patient.

This strategy is effective in identifying patients' needs, but does not necessarily help oncology providers address

and manage these needs in their clinical interactions. Novel approaches are needed to facilitate systematic

symptom assessment and management, and guide the appropriate provision of supportive care in real-world

oncology settings.

To address this critical gap in cancer care, this project will involve the development and pilot testing of a

supportive care tool, embedded in the existing electronic health record, that collects patient-reported

assessments of symptoms and supportive care needs, using well-established tools, and links these data to a

system of evidence-based algorithms for supportive care. Specific aims of this project are: 1) to develop the

content, design and technical infrastructure of an EHR-integrated supportive care tool, based on a pre-

intervention assessment of stakeholder input and the local context; 2) to implement the EHR-integrated

supportive care tool over an [18-month] intervention period in 5 HNCP outpatient clinics, with potential exposure

of the tool to more than [300] eligible HNC patients and clinicians; and 3) to evaluate the [feasibility, acceptability,

and] initial implementation of the EHR-integrated supportive care tool using a mixed methods approach. Findings

from this project will provide the preliminary data to inform the design of a larger pragmatic randomized trial

across multiple cancer clinics.

The proposed K08 Career Development Award is designed to support the candidate's advanced training in

cancer care delivery research, with formal training in the fields of clinical informatics and implementation science,

while developing and pilot testing an electronic supportive care tool for use in routine oncology care. These broad

goals are consistent with the National Cancer Institute's mission and scientific priorities.

Grant Number: 5K08CA252615-05
NIH Institute/Center: NIH

Principal Investigator: Eden Brauer

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