grant
From the Cell to the Street: Personalized Report-Back in Large Cohort Studies with Multi-Level Measurements
Organization SILENT SPRING INSTITUTELocation NEWTON, UNITED STATESPosted 20 May 2024Deadline 29 Feb 2028
NIHUS FederalResearch GrantFY20250-11 years oldActive Follow-upBackBasic ResearchBasic ScienceBioethicistBioethics ConsultantsBiologicalBiological MarkersBiological MonitoringCaliforniaCell BodyCell PhoneCellsCellular PhoneCellular TelephoneCensusesCharacteristicsChemical ExposureChemicalsChildChild HealthChild YouthChildren (0-21)Chronic DiseaseChronic IllnessClinicalCohort StudiesCommunicationCommunitiesCommunity ActionsComplexComputersConcurrent StudiesConsensusDataDevelopmentDisciplineDorsumEducational workshopEngineeringEnvironmental FactorEnvironmental HealthEnvironmental Health ScienceEnvironmental Risk FactorEthical IssuesEthicsFamilyFosteringFoundationsGeneticGeographyGestationGraphHealthHealth behaviorHealth protectionHumanIllinoisIndividualInterviewInvestigatorsJointsKnowledgeLearningLengthLifeLife CycleLife Cycle StagesMeasurementMeasuresMedicineMethodsMobile PhonesModern ManNational Academy of SciencesNational Institutes of HealthNeighborhoodsOutcomeOutcome AssessmentParentsParticipantPatient Self-ReportPersonsPositionPositioning AttributePregnancyPrintingRandomizedReportingResearchResearch EthicsResearch PersonnelResearch ResourcesResearchersResourcesSan FranciscoScienceSelf-ReportSocial EnvironmentSocial supportSourceSurvey InstrumentSurveysTechniquesTestingTrustUncertaintyUnited States National Academy of SciencesUnited States National Institutes of HealthUniversitiesUpdateWorkshopactive followupbio-markersbiologicbiologic markerbiomarkerbiomonitoringchronic disordercohortdesigndesigningdevelopmentaldigitaldigital tooldigital toolkitdoubtenvironmental riskethicalexperienceexposomefollow upfollow-upfollowed upfollowuphealth assessmenthealth literacyhealth related behavioriPhoneinnovateinnovationinnovativeinterestinternet resourcekidslife coursemultiple data typesnon-geneticnongeneticon-line compendiumon-line resourceon-line social networkingonline compendiumonline resourceonline social networkingparentparticipant engagementpatient engagementpregnancy healthpreventpreventingrandomisationrandomizationrandomly assignedrecruitresponsesatisfactionsmart phonesmartphonesocialsocial climatesocial contextsocial factorssocial mediasocial networking sitesocial networking web sitesocial networking websitesocial support networksocioenvironmentsocioenvironmentalstressorsupport toolstelomeretheoriesweb resourceweb-based resourceweb-based social networkingyoungster
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Description preview
A growing consensus gives researchers the responsibility to report results back to individual participants in most studies, based on fundamental ethical principles of human research. Yet, ethical report-back of research results (RBRR) is context-specific, requiring consideration of the people and data in a particular study. New adaptations are…
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