grant
Financial stress, financial strain, asset depletion, and financial toxicity: New measures to characterize the financial impact that dementia has on families
Organization UNIVERSITY OF MICHIGAN AT ANN ARBORLocation ANN ARBOR, UNITED STATESPosted 1 Sept 2024Deadline 30 Jun 2029
NIHUS FederalResearch GrantFY2025AD dementiaAD related dementiaADRDAccess to CareAddressAffectAlzheimer Type DementiaAlzheimer disease dementiaAlzheimer sclerosisAlzheimer syndromeAlzheimer'sAlzheimer's DiseaseAlzheimer's and related dementiasAlzheimer's dementia and related dementiaAlzheimer's dementia or related dementiaAlzheimer's diagnosisAlzheimer's disease and related dementiaAlzheimer's disease and related disordersAlzheimer's disease diagnosisAlzheimer's disease or a related dementiaAlzheimer's disease or a related disorderAlzheimer's disease or related dementiaAlzheimer's disease patientAlzheimer's disease related dementiaAlzheimer's patientAlzheimers DementiaAmentiaAnxietyAstronomyCalibrationCare GiversCaregiversCaringCase Report FormClinicalComputersData AnalysesData AnalysisDementiaDevelopmentEconomic BurdenEconomicsElementsEligibilityEligibility DeterminationEvaluationFamilyFamily CharacteristicsFamily memberFinancial HardshipFinancial SupportHealthHealth Care ProvidersHealth PersonnelHealth Services AccessibilityHome CareHouseholdInterviewInvestigatorsLifeLiteratureLong-Term CareLong-Term Care InsuranceMeasurementMeasuresMental Health ServicesMental Hygiene ServicesMethodsModelingNIH RFANational Institute of AgingNational Institute on AgingOut-of-Pocket ExpenseOutcomeParticipantPatient Outcomes AssessmentsPatient Reported MeasuresPatient Reported OutcomesPatient Self-ReportPatientsPersonal SatisfactionPersonsPoliciesPrimary Senile Degenerative DementiaProtocol ScreeningPublic HealthPublic HousingRequest for ApplicationsResearchResearch PersonnelResearchersRiskSalariesSavingsSelf-ReportServicesSocial InsuranceSocial SecurityStatistical Data AnalysesStatistical Data AnalysisStatistical Data InterpretationStructureSupportive TherapySupportive assistanceSupportive careSurvey InstrumentSurveysSystemTestingTimeUncovered Medical ExpensesUncovered Uninsured Medical ExpenseUninsured Medical ExpenseWagesWorkaccess to health careaccess to health servicesaccess to servicesaccess to treatmentaccessibility of health careaccessibility to health careaccessibility to health servicesavailability of servicescare accesscare costscare givingcare receivercare recipientscare servicescare systemscareercaregivingcostdata interpretationdevelopmentaldisparity in caredisparity in health careeconomicethnic minorityevidence baseexperienceextended carefamily supportfield based datafield learningfield studyfield testfinancial adversityfinancial assistancefinancial burdenfinancial distressfinancial insecurityfinancial strainfinancial stressfinancial toxicityhealth care accesshealth care availabilityhealth care disparityhealth care inequalityhealth care inequityhealth care personnelhealth care service accesshealth care service availabilityhealth care workerhealth providerhealth related quality of lifehealth service accesshealth services availabilityhealth workforcehigh riskimprovedintergenerationallife time costlifetime costloved onesmedical expenses not covered by insurancemedical personnelmembermental health careout-of-pocket costsout-of-pocket health care costspatient home carepatient homecarepatient living with Alzheimer's diseasepatient suffering from Alzheimer's diseasepatient with Alzheimer'spatient with Alzheimer's diseasepaymentphysical conditioningphysical healthpoor health outcomeprimary degenerative dementiaprogramspsychological distressracial minorityreduced health outcomeresponsescreeningscreeningssenile dementia of the Alzheimer typeservice availabilityspace sciencestatistical analysissystem-level barrierstheoriestotal medical expendituretreatment accesstreatment providerwell-beingwellbeingworse health outcome
Description preview
ABSTRACT
Financial hardship (including financial stress, financial strain, asset depletion, and financial toxicity) is a highly
relevant construct among the 5.7 million people with a diagnosis of Alzheimer’s disease and Alzheimer’s
disease related dementias (ADRD) and their caregiving unit. In 2022, the total lifetime cost of care for a patient…
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