grant

Embrace Genomics

Organization JOHNS HOPKINS UNIVERSITYLocation BALTIMORE, UNITED STATESPosted 19 Sept 2024Deadline 30 Jun 2027
NIHUS FederalResearch GrantFY20252 year college21+ years oldAdultAdult HumanAdvisory CommitteesAreaAttentionBaltimoreBiomedical ResearchBookletsBreast CancerBrochuresCancersCardiovascularCardiovascular Body SystemCardiovascular Organ SystemCardiovascular systemChild HealthCitiesClinicalCollaborationsCommunity Health AidesCountyCurriculumDisciplineDiseaseDisorderE-learningEducationEducation ModuleEducational AchievementEducational CurriculumEducational MaterialsEducational ModelsEducational ModuleEducational StatusEducational aspectsEnrollmentEssential HypercholesterolemiaEthicsEvaluationFacultyFamilial HypercholesterolemiaFeedbackFundingGeneral PopulationGeneral PublicGeneticGenetic DiseasesGenomicsGoalsHb SS diseaseHbSS diseaseHealth BenefitHealth CareHeart VascularHemoglobin S DiseaseHemoglobin sickle cell diseaseHemoglobin sickle cell disorderHigh PrevalenceHyperbetalipoproteinemiaHyperlipoproteinemia Type 2Hyperlipoproteinemia Type IIIndividualInstitutionInstructional ModelsInternationalJobsJournalsKnowledgeLaboratoriesLeadLearningLearning ModuleMagazineMalignant Breast NeoplasmMalignant NeoplasmsMalignant TumorMedicalMedicineNational Institutes of HealthOccupationsOrphan DiseaseOutcomePamphletsParticipantPatient Self-ReportPb elementPositionPositioning AttributeProfessional OrganizationsProfessional PositionsProgram DevelopmentProtocolProtocols documentationPublic HealthPublishingRare DiseasesRare DisorderReproductive HealthResearchRoleSelf-ReportSickle Cell AnemiaSiteSlideSpecialtyStudentsSurvey InstrumentSurveysTask ForcesTeaching ModuleTrainingTraining ProgramsType 2 HyperlipidemiaType II HyperlipidemiaUnited States National Institutes of HealthUpdateWorkforce Developmentadulthoodadvisory teamanimationcertificate programcirculatory systemcommunity collegecommunity health workercomputer-assisted instructioncomputer-based educationcomputer-based instructioncomputer-based learningcomputer-based trainingcostdelivered on-linedelivered onlinedesigndesigningdigital educationdigital learningeLearningeducational leveleducational methodseducational practiceseducational principleselectronic learningenrollethicalexperiencefamilial hyperbetalipoproteinemiafamilial hypercholesteremiafamilial hyperlipoproteinemia type 2familial hyperlipoproteinemia type IIgenetic conditiongenetic disorderheavy metal Pbheavy metal leadimprovedinstructorinternet-assisted educationinternet-based trainingjunior collegeknowledgebaselab curriculumlab experiencelab traininglaboratory courselaboratory curriculumlaboratory experiencelaboratory traininglectureslesson plansmalignancymalignant breast tumormedical specialtiesmeetingmeetingsmultimedia learningneonatal healthneoplasm/cancernewborn healthon-line deliveryon-line educationon-line learningonline deliveryonline educationonline learningorphan disorderprofessional associationprofessional membershipprofessional societyprogramsresponsible research conductsickle cell diseasesickle cell disordersickle diseasesicklemiaskillssocial mediasocial roletechnology-enhanced learningtheoriestraining achievementtraining leveltraining statustwo year collegevirtual learningweb based deliveryweb siteweb-based instructionweb-based trainingwebsiteworkforce needs
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Full Description

Genetics and genomics have become increasingly important in research and medicine. The understanding of the genetic contribution to disease is quickly expanding from rare disease to common disease, making genetics and genomics relevant to all. We endorse that all levels of the research and clinical workforce should have fundamental knowledge and skills in genetics and genomics and understand its role in public health. These steps are necessary to boost enrollment in research and effectively incorporate genetics and genomics into healthcare.

To achieve this goal, we will develop genomics educational modules (GEMs) for the entry-level medical and research workforce. These modules will build on our recent experience developing and delivering an online Genetic Assistant Training Program (GATP) to over 300 successful graduates. Using participant feedback from the GATP and input from a carefully selected Advisory Committee of educators and employers, we will develop GEM content based on the most update to genomics information, best practices, and workforce needs. The content of these modules will be devoted to the following topics: Genetics & Genomics of Cardiovascular Conditions, Cancer, Reproductive Healthcare, Newborn Health, Child Health, Laboratory Genomics, and Responsible Conduct of Research.

Educational content will include slide decks, recorded lectures, lab protocols, and assessments. We will incorporate animations in education modules to boost engagement and use the educational principles of adult learning theory and universal design for learning to maximize the educational impact. We will pilot and refine existing and new GEMs targeted to students in entry-level training programs at three local partner sites that offer courses for laboratory associates, medical assistants, and community health workers. These sites include Baltimore’s BioTechnical Institute (BTI), the Community College of Baltimore County (CCBC) Medical Assistant training program, and the Baltimore City Community College (BCCC) Healthcare Workforce Development Program.

These sites were selected given that they have established entry-level training programs, their programs include multiple professions that span both laboratory and clinical positions, and train individuals that are likely to be hired by the multitude of local research and medical institutions and companies. Ultimately, we will disseminate the GEMs at no cost on an easily accessible website with the capability to be downloaded and used both nationally and internationally.

Grant Number: 5R25HG013492-02
NIH Institute/Center: NIH

Principal Investigator: Carolyn Applegate

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