grant

Data Sharing and Archiving for Demographic Research

Organization UNIVERSITY OF MICHIGAN AT ANN ARBORLocation ANN ARBOR, UNITED STATESPosted 1 Sept 2004Deadline 30 Apr 2027
NIHUS FederalResearch GrantFY20240-11 years old21+ years oldAdolescentAdolescent YouthAdultAdult HumanAgingAllyAreaBehaviorBiologicalBiological MarkersChildChild HealthChild YouthChildren (0-21)CodeCoding SystemCommunicable DiseasesCommunitiesContraceptive UsageCustomDataData AnalysesData AnalysisData BanksData CollectionData SetData SourcesDatabanksDemographerDepositDepositionDevelopmentDisciplineDisclosureDiseaseDisorderDocumentationElementsEnsureEnvironmentFAIR dataFAIR guiding principlesFAIR principlesFindable, Accessible, Interoperable and Re-usableFindable, Accessible, Interoperable, and ReusableFundingGene x Environment InteractionGenerationsGeneticGenomicsGoalsGxE interactionHealthHealth behavior and outcomesHigh Performance ComputingIndividualInfectious Disease PathwayInfectious DiseasesInfectious DisorderInformation DisclosureInfrastructureInternationalInvestigatorsKnowledgeLearningLifeLife CycleLife Cycle StagesLinkMaternal HealthMaternal and Child HealthMetadataMichiganMolecularNICHDNational Institute of Child Health and Human DevelopmentNational Institute of Children's Health and Human DevelopmentNatureOrganismPersonal SatisfactionPolicy MakerPoliticsPopulationPopulation DynamicsPopulation SciencesPopulation StudyPrivacyProductionPublic HealthR-Series Research ProjectsR01 MechanismR01 ProgramRecordsReproducibilityResearchResearch GrantsResearch InfrastructureResearch PersonnelResearch PriorityResearch Project GrantsResearch ProjectsResearch ResourcesResearch SpecimenResearch SupportResearchersResourcesRespondentRiskRoleSample SizeScientific Advances and AccomplishmentsScientistSecureSourceSpecimenStandardizationStrategic PlanningSurvey InstrumentSurveysSystemTechniquesTrainingUniversitiesadolescent healthadulthoodadulthood transitionanalytical toolarchive dataarchiving databio-markersbiologicbiologic markerbiomarkercommunity buildingconferencecontraceptive useconventioncustomsdata archivedata archivesdata depositorydata enclavedata explorationdata interpretationdata librarydata repositorydata resourcedata set repositorydata sharingdataset repositorydevelopmentaldisabilitydisease preventiondisorder preventiondisparity in healthenvironment effect on geneexpectationgene environment interactionglobal healthhealth disparityhealthy pregnancyhigh-end computinghuman subject protectionimprovedinnovateinnovationinnovativeinterestjuvenilejuvenile humankidslife courselife spanlifespanliving systemmeta datamigrationneural imagingneuro-imagingneuroimagingneurological imagingoutreachpopulation-based studypopulation-level studyscientific accomplishmentsscientific advancessecondary analysissocialsocial mediasocial rolestudies of populationsstudy of the populationsummitsymposiasymposiumtargeted biomarkertooltraining opportunitytransition from adolescence to adulthoodtransition into adulthoodtransition to adulthoodusabilityvirtualwebinarwell-beingwellbeingyoungster
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Full Description

Project Summary
The Data Sharing for Demographic Research (DSDR) project of the Inter-university Consortium

for Political and Social Research (ICPSR) supports population science and related fields by

making it possible for researchers, policy makers and others to discover, access, and analyze

relevant secondary data. Access to high-quality, generalizable data about populations facilitates

scientific advancements at a pace that is not possible when researchers are limited to the data

resources they produce themselves. Specifically, data that are findable, accessible,

interoperable, and reusable are critical to transparency and research reproducibility as well as

making it feasible for scientists to combine data of different types and from different sources for

a more nuanced understanding of the context of health outcomes and behaviors. DSDR

provides the infrastructure for researchers to see the scope of available data; access both

public- and restricted-use data while protecting human subjects; integrate emerging data types

such as biomarkers, genomics, and administrative record data; and learn from others in the

demographic community about the data and relevant analytic techniques.

DSDR leverages the capabilities and capacities of ICPSR, the Institute for Social Research, and

the University of Michigan to support research on maternal and child health, the lifecourse,

health disparities, migration, relationship formation and dissolution, and more in the U.S. and

internationally. To meet the aims set forth by NICHD, DSDR proposes five main objectives: 1)

Sustain and build the collection of data, documentation, and other support files, 2) Improve

discoverability and exploration of data, 3) Amplify access to restricted-use data, 4) Enable the

combining of new types of data (e.g., biomarkers, neuroimages, and administrative records)

with survey data, and 5) Offer training and perform outreach to engage the demographic

community. ICPSR’s high-quality curation, creation of standardized information describing the

data, dissemination of complete documentation including codebooks and user guides, and

training opportunities ensures researchers can more easily find, evaluate, and use data

collected by others to answer new and innovative research questions while upholding

respondent privacy expectations.

Grant Number: 5R24HD048404-20
NIH Institute/Center: NIH

Principal Investigator: Joseph Alexander

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