grant
The Columbia PCC for CureGN: the Cure Glomerulonephropathy network
Organization COLUMBIA UNIVERSITY HEALTH SCIENCESLocation NEW YORK, UNITED STATESPosted 16 Sept 2013Deadline 31 May 2029
NIHUS FederalResearch GrantFY20250-11 years old21+ years oldAPOL-IAPOL1APOL1 geneAccelerationAchievementAchievement AttainmentActive Follow-upAddressAdultAdult HumanAdvocacyAffectAncillary StudyBerger's DiseaseBiocompatible MaterialsBiologyBiomaterialsBiopsyBloodBlood Reticuloendothelial SystemCaringCausalityChildChild YouthChildhoodChildren (0-21)ClassificationClinicClinicalClinical DataClinical ResearchClinical StudyCollaborationsCollectionCommunicationCommunitiesConsultationsDataData BasesData CollectionData Coordinating CenterData Coordination CenterDatabasesDevelopmentDiagnosisDisciplineDiseaseDisease remissionDisorderEducational workshopElectronic Health RecordEmergent TechnologiesEmerging TechnologiesEnrollmentEnsureEpigeneticEpigenetic ChangeEpigenetic MechanismEpigenetic ProcessEtiologyExtramembranous GlomerulopathyFSGSFocal and Segmental GlomerulosclerosisFocal segmental glomerular sclerosisFormalinFosteringFundingFunding AgencyFunding SourceFutureGeneticGlomerular diseaseGoalsGrantHealth Care TechnologyHealth TechnologyHeterogeneityIGA GlomerulonephritisIGA NephropathyImmunochemical ImmunologicImmunologicImmunologicalImmunologicallyImmunologicsIndividualIndustryInfrastructureInternationalInvestigationInvestigatorsKidney DiseasesKidney FailureKidney InsufficiencyKnowledgeLongitudinal observation studyLongitudinal, observational studyMedical Record LinkageMembranous GlomerulonephritisMembranous GlomerulonephropathyMembranous GlomerulopathyMembranous NephropathyMethodsMichiganMissionModernizationMorbidityMorbidity - disease rateNatural HistoryNephrologyNephropathyNorth CarolinaObservation researchObservation studyObservational StudyObservational researchOutcomeOutputParaffin EmbeddingParticipantPathogenesisPathologyPatient Outcomes AssessmentsPatient ParticipationPatient Reported MeasuresPatient Reported OutcomesPatientsPatternPennsylvaniaPersonsPhasePilot ProjectsPopulationPrecision careProceduresProcessProductivityProfessional OrganizationsPrognosisProtocolProtocols documentationPublicationsPublishingRNA SeqRNA sequencingRNAseqRemissionRenal DiseaseRenal FailureRenal Glomerular Diseases and SyndromesRenal InsufficiencyRenal glomerular diseaseRenal glomerular disease or syndromeRenal glomerular disorderRenal glomerular syndromeResearchResearch PersonnelResearchersRisk-associated variantRoleSample SizeScienceScientific PublicationScientistServicesSiteStandardizationStatistical Data AnalysesStatistical Data AnalysisStatistical Data InterpretationStructureSystematicsTimeTissue EmbeddingTrainingTranslational ResearchTranslational ScienceUniversitiesUrineVisitWorkWorkshopactionable mutationactionable variantsactive followupadulthoodbiobankbiological materialbiopharmaceutical companybiopharmaceutical industrybiorepositorycareer developmentcausationclinical centercohortcommunity engagementconsultationdata basedata collection methodologydepositorydevelopmentaldigital pathologydisease causationelectronic health care recordelectronic health medical recordelectronic health plan recordelectronic health registryelectronic medical health recordengagement with communitiesenrollentire genomeepigeneticallyexposomeexposomicsfocal glomerulonephritisfollow upfollow-upfollowed upfollowupfull genomegenetic resultsgenetic testing resultsgenome sequencinghandheld mobile devicehigh riskhigh standardimmunoglobulin A glomerulonephritisimmunoglobulin A nephropathyimprovedindividualized careindividualized patient careindustrial partnershipindustry partnerindustry partnershipinnovateinnovationinnovativekidney biopsykidney disorderkidney imagingkidsm-HealthmHealthmetabolism measurementmetabolomicsmetabonomicsmobile devicemobile healthmortalitymulti-modal datamulti-modal datasetsmultidisciplinarymultimodal datamultimodal datasetsnext generationnovelobservational cohort studyoutreachpandemicpandemic diseaseparticipant engagementparticipant retentionpatient advocacy grouppatient engagementpediatricpersonalized carepersonalized patient carepilot studyprecision medicineprecision-based medicinepredict clinical outcomeprofessional associationprofessional membershipprofessional societyprogramsprospectiverecruitrenal biopsyrenal disorderrepositoryresponse to therapyresponse to treatmentrisk allelerisk generisk genotyperisk locirisk locusrisk variantsample collectionsegmental glomerulonephritissocialsocial health determinantssocial rolespecimen collectionstatistical analysistherapeutic responsetherapy responsetooltranscriptome sequencingtranscriptomic sequencingtranslation researchtranslational investigationtreatment responsetreatment responsivenesstreatment strategywhole genomework groupworking groupyoungster
Description preview
Abstract
Primary glomerular diseases, including minimal change disease (MCD), focal segmental glomerulosclerosis
(FSGS), immunoglobulin A nephropathy (IgAN), and membranous nephropathy (MN), are associated with
significant morbidity and mortality in both adults and children. The Cure Glomerulonephropathy (CureGN)
study launched in 2013 to address…
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