grant
Down Syndrome Clinical Cohort Coordinating Center (DS-4C) for the INCLUDE Project
Organization RESEARCH TRIANGLE INSTITUTELocation RESEARCH TRIANGLE PARK, UNITED STATESPosted 20 Sept 2024Deadline 31 Aug 2029
NIHUS FederalResearch GrantFY2025AdvocacyAffectAwarenessClinicalCollaborationsCollectionCommunicationCommunitiesCommunity OutreachComplexDataData CollectionData Coordinating CenterData Coordination CenterDevelopmentDown SyndromeEcologic SystemsEcological SystemsEcosystemEducation and OutreachEnsureEquityEspanolEventFamilyFosteringFriendsGenetic CounselingGoalsHealthHistoryHuman ResourcesIncentivesIndividuals with down syndromeInstruction and OutreachInternationalInvestigationInvestigatorsInvestmentsKnowledgeLangdon Down syndromeLeadershipManpowerMedicalMethodsMissionMongolismMonitorOutcomeParticipantPatient RecruitmentsPersonal SatisfactionPersonnel RecruitmentsPhenotypePopulationPopulation HeterogeneityPrincipal InvestigatorProductivityProgram DevelopmentProtocolProtocols documentationR-Series Research ProjectsR01 MechanismR01 ProgramRecording of previous eventsRecruitment ActivityResearchResearch GrantsResearch PersonnelResearch Project GrantsResearch ProjectsResearch ResourcesResearchersResourcesScienceSiteSpanishStructureSystemTest ResultTrainingTraining ProgramsTraining and OutreachTrisomy 21Tutoring and OutreachUnderrepresented GroupsUnderrepresented PopulationsUnderserved PopulationUniversitiesWorkactive recruitmentbiobankbiorepositoryburden on familiesburden to familieschromosome 21 trisomychromosome 21 trisomy syndromeco-morbidco-morbiditycohortcommunity engaged participatory researchcommunity engaged researchcommunity engagementcommunity partnered researchcommunity partnershipcommunity-engaged studycommunity-partnered studycomorbiditycongenital acromicria syndromecostdata exchangedata harmonizationdata hubdata managementdata transferdata transmissiondesigndesigningdevelopmentaldiverse populationsdiversity and inclusiondiversity and inclusivitydown syndrome individualsdown syndrome patientsengagement with communitiesexperiencefamilial burdenfamily burdengenetic consultationgraduate studentharmonized datahealth equityhealth equity promotionheterogeneous populationhistoriesimprovedinnovative technologiesinsightinternet portallife spanlifespanmeetingmeetingsmembermorbus Downon-line portalonline portaloutreachparticipant recruitmentpatients with down syndromepeople with down syndromepersonnelphenotypic datapopulation diversityprogramspromote health equityprotocol developmentpseudohypertrophic progressive muscular dystrophyrecruitsharing hubskillssuccesstooltrisomy 21 syndromeunder representation of groupsunder represented groupsunder represented peopleunder represented populationsunder served groupunder served individualunder served peopleunder served populationundergradundergraduateundergraduate studentunderrepresentation of groupsunderrepresented peopleunderserved groupunderserved individualunderserved peopleweb portalweb-based portalwell-beingwellbeing
Description preview
PROJECT SUMMARY/ABSTRACT
The overarching goal of the proposed INCLUDE Clinical Cohort Coordinating Center (DS-4C), co-led by
investigators at RTI International and Emory University, is to improve the health and well-being of individuals
with Down syndrome (DS) by supporting the INCLUDE Project’s DS Cohort Development Program (DS-CDP).
In this…
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