grant

Development and validation of a patient-reported outcome measure to improve quality of life related to cutaneous chronic GVHD

Organization UNIVERSITY OF PENNSYLVANIALocation PHILADELPHIA, UNITED STATESPosted 2 Dec 2024Deadline 30 Nov 2029
NIHUS FederalResearch GrantFY2025AllogenicBiometricsBiometryBiostatisticsCancer CenterCancersCareer Development AwardsCareer Development Awards and ProgramsCareer Development Programs K-SeriesChronicChronic GVHDClient satisfactionClinicalClinical TrialsClinical Trials DesignCollectionConsensusCross Sectional AnalysisCross-Sectional AnalysesCross-Sectional StudiesCross-Sectional SurveyCutaneousCutaneous DisorderData SetDelphi StudyDermatologicDermatologicalDermatologistDermatologyDermatosesDevelopmentDevice or Instrument DevelopmentDimensionsDiseaseDisease Frequency SurveysDisorderEnrollmentFDA approvedGoalsHSC transplantationHealthHematopoietic Stem Cell TransplantHematopoietic Stem Cell TransplantationHumanImpaired healthImpairmentInterventionIntervention StudiesInterviewK-AwardsK-Series Research Career ProgramsLabelLived experienceLived experiencesMalignant NeoplasmsMalignant TumorManuscriptsMaster of ScienceMaster's DegreeMeasuresMedicineMentorsMentorshipMethodsModern ManModernizationMorbidityMorbidity - disease rateMulti-center studiesMulticenter StudiesObservation researchObservation studyObservational StudyObservational researchOutcomeOutcome MeasurePainPainfulPatient CarePatient Care DeliveryPatient Outcomes AssessmentsPatient Reported MeasuresPatient Reported OutcomesPatient SatisfactionPatient outcomePatient-Centered OutcomesPatient-Focused OutcomesPatientsPennsylvaniaPerceptionPhysical FunctionPhysiciansProgenitor Cell TransplantationPropertyProspective StudiesProspective, cohort studyProtocolProtocols documentationPsychometricsPublishingQOLQOL improvementQuality of lifeReportingResearchResearch Career ProgramResearch MethodologyResearch MethodsResistanceRiskSamplingScienceScientistSelection for TreatmentsSeveritiesSeverity of illnessSkinSkin DiseasesSkin Diseases and ManifestationsStandardizationStem Cell TransplantationStem cell transplantStructureSymptomsTestingTherapeuticThickThicknessTrainingTransplantationTreatment EfficacyUnited StatesUniversitiesValidationValidity and Reliabilityblood stem cell transplantationburden of diseaseburden of illnesscare for patientscare of patientscareercaring for patientschronic graft versus host diseasechronic graft vs host diseasechronic graft vs. host diseasechronic inflammatory skinchronic itchchronic pruritusclinical epidemiologyclinical practicecognitive interviewcostcutaneous diseasedermal diseasedermal disorderdesigndesigningdevelopmentaldevice developmentdisease burdendisease severityemotional distressenrollethnic diversityethnically diverseexperiencefeeling distressfeeling upsetfunctional disabilityhealth related quality of lifehematopoietic cell transplantationhematopoietic cellular transplantationhematopoietic progenitor cell transplantationhigh riskimprovedimproved outcomeimprovements in QOLimprovements in quality of lifeinstrumentinstrument developmentintervention efficacyintervention researchinterventional researchinterventional studyinterventions researchmalignancymeasurable outcomemembermortalityneoplasm/cancernew drug treatmentsnew drugsnew pharmacological therapeuticnew therapeuticsnew therapynext generation therapeuticsnovel drug treatmentsnovel drugsnovel pharmaco-therapeuticnovel pharmacological therapeuticnovel therapeuticsnovel therapyoutcome measurementpatient centeredpatient orientedpatient oriented outcomespredict clinical outcomepreventpreventingprofessorprogenitor transplantationprospectivepsychologicpsychologicalquality of life improvementracial diversityracially diverseresearch and methodsresistantresponseresponse to therapyresponse to treatmentselection of treatmentskin disordersocialsoundstandard of carestem and progenitor cell transplantationstheoriestherapeutic efficacytherapeutic responsetherapy efficacytherapy responsetherapy selectiontransplanttreatment responsetreatment responsivenesstreatment selectiontreatment strategyvalidations
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PROJECT SUMMARY
Candidate: I am an Assistant Professor of Dermatology and Medicine at the University of Pennsylvania and a

physician-scientist with a Master of Science in Clinical Epidemiology as well as expertise caring for patients

with GVHD. I have a strong track record of published research at the intersection of dermatology, cancer, and…

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