grant
Developing shared medical appointments for informal caregivers of Alzheimer’s and Dementia patients to improve knowledge, communication, and advanced planning
Organization CLEVELAND CLINIC LERNER COM-CWRULocation CLEVELAND, UNITED STATESPosted 15 Aug 2024Deadline 30 Apr 2029
NIHUS FederalResearch GrantFY2025AD related dementiaADRDAddressAdvance Care PlanningAdvance Health Care PlanningAffectAlzheimer's and related dementiasAlzheimer's care giverAlzheimer's caregiverAlzheimer's dementia and related dementiaAlzheimer's dementia care giverAlzheimer's dementia caregiverAlzheimer's dementia or related dementiaAlzheimer's disease and related dementiaAlzheimer's disease and related disordersAlzheimer's disease care giverAlzheimer's disease caregiverAlzheimer's disease or a related dementiaAlzheimer's disease or a related disorderAlzheimer's disease or related dementiaAlzheimer's disease patientAlzheimer's disease related dementiaAlzheimer's patientAmentiaAmericanAnalgesic ManagementAppointmentAttitudeAwarenessCancersCaringCharacteristicsChargeChemicalsCommunicationCommunication ResearchCommunity PhysicianConsultCurriculumDataDecision MakingDementiaDevelopmentDevicesDiagnosisDiseaseDisease ManagementDisease ProgressionDisorderDisorder ManagementDistressEducationEducational BackgroundEducational CurriculumEducational aspectsEffectivenessElderlyEnvironmentEthnic OriginEthnicityEvaluationEventFamilyFamily memberFreedomFutureGoalsHealth CareHealth Care ProvidersHealth PersonnelHeart failureHospice CareHospicesHospital AdmissionHospitalizationHospitalsInformal care giverInsuranceInterviewKnowledgeLearningLibertyMalignant NeoplasmsMalignant TumorMeasuresMedicalMedication ManagementMentorshipMethodsModelingNational Institutes of HealthPalliative CarePalliative TherapyPalliative TreatmentParticipantPatientsPerceptionPharmacologic ManagementPhysical ImmobilizationPhysical RestraintPhysiciansPreparednessPrevalenceQOCQualitative ResearchQuality of CareRaceRacesRandomized, Controlled TrialsReadinessRecommendationReligionReligious BeliefResearchResearch MethodologyResearch MethodsResearch ResourcesResearch TechnicsResearch TechniquesResourcesSelf EfficacyServicesStructureSurvey InstrumentSurveysSymptomsTerminal DiseaseTerminal IllnessTimeTrustTubeUnited States National Institutes of Healthadvanced ageassess effectivenesscardiac failurecare giver stresscare givingcaregiver distresscaregiver stresscaregivers of patients living with Alzheimer'scaregivers of patients with Alzheimer'scaregivers of persons living with Alzheimer'scaregivingclinician communicationcomfort carecommunicate to clinicianscommunicate to providerscommunicate with clinicianscommunicate with doctorscommunicate with providerscommunity based participatory researchcommunity led researchcommunity participatory researchcommunity partnered participatory researchconsultsdesigndesigningdetermine effectivenessdevelop therapydevelopmentaldiscountdoctor communicationeffectiveness assessmenteffectiveness evaluationend of lifeend of life careend-of-lifeevaluate effectivenessexamine effectivenessexperiencegeriatricgoal concordant caregoal concordant managementgoal concordant treatmenthealth care personnelhealth care workerhealth communicationhealth literacyhealth providerhealth workforcehospice environmentimprovedinformal caregiverinnovateinnovationinnovativeinterestintervention developmentlesson plansmalignancymedical appointmentmedical personnelmedication therapy managementmindfulnessneoplasm/cancernoveloptimismpalliative interventionparticipatory action researchpatient living with Alzheimer's diseasepatient suffering from Alzheimer's diseasepatient with Alzheimer'spatient with Alzheimer's diseasepatient-clinician communicationpatient-doctor communicationpatient-provider communicationpositive attitudepreferencepreventpreventingprovider communicationracialracial backgroundracial diversityracial originracially diverserandomized control trialreligiousresearch and methodsresponsesenior citizenskillssocial integrationstress among caregiverstress in caregiverstress on caregiverterminal declinetherapy developmenttraumatic eventtreatment developmenttreatment provideruser centered design
Description preview
Project Summary
The prevalence of Alzheimer's Disease and related Dementias (ADRD) is expected to triple by 2060, affecting
about 14 million Americans. As ADRD progresses, symptoms worsen, putting informal caregivers (ICs) in charge
of tending to patients' needs. The majority of ICs are unprepared for the challenges of ADRD and are unaware
that…
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