grant
BDCRC - Administrative Core
Organization HUGO W. MOSER RES INST KENNEDY KRIEGERLocation BALTIMORE, UNITED STATESPosted 15 Sept 2025Deadline 31 Aug 2030
NIHUS FederalResearch GrantFY20250-11 years oldAccelerationAchievementAchievement AttainmentAdvocacyAffectAgreementAmentiaBatten DiseaseBatten-Mayou DiseaseBatten-Spielmeyer-Vogt DiseaseBioinformaticsBiometricsBiometryBiostatisticsBlindnessCaringChildChild YouthChildren (0-21)ClinicalClinical ResearchClinical StudyClinical Trials UnitCollaborationsCommunicationData Management CoreDegenerative Neurologic DisordersDementiaDevelopmentDiagnosisDiseaseDisorderEnsureEnvironmentEpilepsyEpileptic SeizuresEpilepticsFamilyFundingFutureGeneral PopulationGeneral PublicGenesHereditaryHistoryHumanIDDRCIDDRPIRBIRBsIndividualIndustryInformation DisseminationInfrastructureInheritedInstitutionInstitutional Review BoardsIntellectual and Developmental Disabilities Research CentersJuvenile Cerebroretinal DegenerationK12K12 AwardK12 MechanismK12 ProgramKnowledgeLeadershipMRDD Research CenterMRDDRCMental Retardation and Developmental Disabilities Research CentersMentored Clinical Scientist Development ProgramMissionModern ManMonitorNervous System Degenerative DiseasesNeural Degenerative DiseasesNeural degenerative DisordersNeurodegenerative DiseasesNeurodegenerative DisordersNeurologic Degenerative ConditionsNeurologistNeuronal Ceroid-LipofuscinosisOrphan DiseasePathogenicityPathologicPatient advocacyPatientsPilot ProjectsPoliciesProceduresR-Series Research ProjectsR01 MechanismR01 ProgramRare DiseasesRare DisorderRecording of previous eventsResearchResearch GrantsResearch Project GrantsResearch ProjectsResearch ResourcesResearch SupportResourcesSeizure DisorderSiteSpielmeyer-Vogt DiseaseSubgroupTranslational ResearchTranslational ScienceTranslationsUnited StatesVariantVariationadvocacy organizationsbiobankbiorepositorycareercareer developmentceroid lipofuscinosisclinical trial readinessdata management and coordinating centerdata management centerdata qualitydegenerative diseases of motor and sensory neuronsdegenerative neurological diseasesdevelopmentaldissemination of resultsentire genomeepilepsiaepileptogenicevidence baseexome sequencingexome-seqexperiencefull genomegene panelgenome sequencinghereditary ceroid lipofuscinosishistoriesimprovedkidsmeetingmeetingsmotor diseasemotor disordermotor dysfunctionmultigene panelneurodegenerative illnessnew drug treatmentsnew drugsnew pharmacological therapeuticnew therapeuticsnew therapynext generation therapeuticsnovelnovel drug treatmentsnovel drugsnovel pharmaco-therapeuticnovel pharmacological therapeuticnovel therapeuticsnovel therapyorphan disorderpatient advocacy grouppilot studypre-clinicalpre-clinical therapypreclinicalpreclinical therapyprogramstranslationtranslation researchtranslational investigationvision lossvisual losswhole genomeyoungster
Description preview
ADMINISTRATIVE CORE – PROJECT SUMMARY/ABSTRACT
The Batten Disease Clinical Research Consortium (BDCRC) Administrative Core will serve as the organizational
center of the BDCRC, providing leadership, support, and coordination of the Cores and Research Projects. It will
serve as the primary liaison between patient advocacy groups, industry, the…
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