grant
ARDVARC-Advancing Rare Disorders: Vascular mAlformation Research Network with CaNVAS: Admin Core
Organization CHILDREN'S HOSP OF PHILADELPHIALocation PHILADELPHIA, UNITED STATESPosted 25 Aug 2025Deadline 31 May 2030
NIHUS FederalResearch GrantFY2025Advisory CommitteesAdvocateAgreementAwarenessBioinformaticsBiometricsBiometryBiostatisticsBlood VesselsBudgetsCancer CenterCentral Conducting Lymphatic AnomalyChildren's HospitalClinicalClinical ResearchClinical StudyClinical TrialsCollaborationsCommunicationCommunication MethodsCongenital Lymphatic DisorderContracting OpportunitiesContractsCoordination and CollaborationData SetDevelopmentDiffuse cystic angiomatosis of boneDiseaseDisorderEnsureFingersFundingGeneralized Lymphatic AnomalyGorham diseaseGorham syndromeGorham's DiseaseGorham-Stout diseaseGorham-Stout syndromeGrantHematologyIRBIRBsIndividualIndustryInfrastructureInstitutional Review BoardsLeadershipLymphangiomatosisMassive OsteolysesMassive osteolysisMeasuresNewsletterOncologyOncology CancerOrphan DiseaseOsteolysis massiveOutcomePatient ParticipationPatient advocacyPatientsPediatric HospitalsPhiladelphiaPoliciesPreparationProceduresProcessQuality ControlR-Series Research ProjectsR01 MechanismR01 ProgramRare DiseasesRare DisorderResearchResearch DesignResearch GrantsResearch Project GrantsResearch ProjectsRoleScheduleScientistSeasonsSelf-Help GroupsSiteSpecialistStandardizationStudy TypeSupport GroupsTask ForcesVanishing bone diseaseVascular DiseasesVascular DisorderWorkadvisory teamblood vessel disordercareerclinical infrastructureclinical research siteclinical siteclinical trial readinessdashboarddata managementdata sharingdata standardizationdata standardsdevelopment policydevelopmentalexecutive controlexecutive functionexperiencemalformationmeetingmeetingsmemberoperationoperationsorphan disorderpreparationsprogramsself help organizationskillssocial rolestudy designsuccesstime intervalvascularvascular dysfunctionvasculopathywork groupworking group
Description preview
ARDVARC Administrative Core: Project Summary/Abstract
The Administrative Core (AC) of Advancing Rare Disorders – Vascular mAlformation Research network with
CaNVAS is responsible for the overall administration and operation of this RDCRC, including coordination and
management of policy and procedure development, contracting, funds allocation,…
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