grant

Administrative Core

Organization UNIVERSITY OF MIAMI SCHOOL OF MEDICINELocation CORAL GABLES, UNITED STATESPosted 30 Sept 2014Deadline 31 Aug 2030
NIHUS FederalResearch GrantFY2025AdvocacyAmyotrophic Lateral SclerosisAmyotrophic Lateral Sclerosis Motor Neuron DiseaseAmyotrophic lateral sclerosis and frontotemporal degenerationAmyotrophic lateral sclerosis and frontotemporal dementiaBiologicalBiometricsBiometryBiostatisticsBiotechBiotechnologyCare GiversCaregiversCaringCertificationClinicClinicalClinical ProtocolsClinical ResearchClinical StudyCollaborationsCollectionCommunicationCommunitiesComplexDataData BanksData Management CoreDatabanksDedicationsDegenerative Neurologic DisordersDiseaseDisorderEducationEducational aspectsElectronic Health RecordEvolutionFTD/ALSFTLD/ALSFamily Care GiverFamily CaregiverFamily memberFosteringFrontotemporal Lobar Degeneration/Amyotrophic lateral sclerosisFundingGehrig's DiseaseGoalsHMSN Type VHereditary Motor-Sensory Neuropathy with Pyramidal SignsHereditary Spastic ParaplegiaInvestigatorsLateral SclerosisLou Gehrig DiseaseMissionNervous System Degenerative DiseasesNeural Degenerative DiseasesNeural degenerative DisordersNeurodegenerative DiseasesNeurodegenerative DisordersNeurologic Degenerative ConditionsOrphan DiseaseOutcomePatientsPoliciesPrimary Lateral SclerosisProceduresProcessProductivityProgressive Muscular AtrophyProgressive Myelopathic Muscular AtrophyRare DiseasesRare DisorderResearchResearch ActivityResearch PersonnelResearch ResourcesResearchersResource DevelopmentResourcesRoleSaint JudeSaint Jude Children's Cancer CenterSaint Jude Children's Research HospitalSamplingSiteSpastic Paraplegia-Hypertrophic Motor-Sensory NeuropathySt. JudeSt. Jude Children's Cancer CenterSt. Jude Children's Research HospitalSt. Jude Children's Research Hospital Comprehensive Cancer CenterSt.Jude Children's Cancer CenterSt.Jude Children's Research HospitalSt.Jude Children's Research Hospital Comprehensive Cancer CenterStandardizationStructureTimeTrainingType V Hereditary Motor and Sensory NeuropathyWorkamyotrophic lateral sclerosis with frontotemporal dementiaamyotrophic lateral sclerosis/FTLDamyotrophic lateral sclerosis/frontotemporal dementiaamyotrophic lateral sclerosis/ftdbiobankbiologicbiorepositorycareer developmentclinical trial readinesscommunity engagementdata depositorydata managementdata management and coordinating centerdata management centerdata repositorydata set repositorydata sharingdataset repositorydegenerative diseases of motor and sensory neuronsdegenerative neurological diseasesdevelop therapydevelopment policyelectronic health care recordelectronic health medical recordelectronic health plan recordelectronic health registryelectronic medical health recordengagement with communitiesfrontotemporal dementia-amyotrophic lateral sclerosisfrontotemporal lobar dementia amyotrophic lateral sclerosisgenomic datagenomic datasetintervention developmentmembermulti-modal datamulti-modal datasetsmultidisciplinarymultimodal datamultimodal datasetsmultisystem proteinopathyneurodegenerative illnessorphan disorderoutreachpatient advocacy groupphenotypic dataprogressive spinal muscular atrophyprotocol developmentsocial roletherapeutic agent developmenttherapeutic developmenttherapy developmenttooltreatment developmentwork groupworking group
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PROJECT SUMMARY (Administrative Core)
The Administrative Core of the CReATe Consortium is responsible for coordinating and supporting all activities

of the CReATe Consortium, to enable this Rare Diseases Clinical Research Consortium (RDCRC) to achieve

its scientific, educational and stakeholder engagement goals, and to function effectively as part…

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Administrative Core — UNIVERSITY OF MIAMI SCHOOL OF MEDICINE | UNITED STATES | Sept 2014 | Dev Procure