grant
A Scientific Retreat to Address Ethical Challenges in Data and Sample Sharing to Advance Neurodegenerative Research
Organization GEORGIA STATE UNIVERSITYLocation ATLANTA, UNITED STATESPosted 11 Aug 2025Deadline 31 Jul 2028
NIHUS FederalResearch GrantFY2025AD related dementiaADRDAccelerationAddressAffectAgingAlzheimer's and related dementiasAlzheimer's dementia and related dementiaAlzheimer's dementia or related dementiaAlzheimer's disease and related dementiaAlzheimer's disease and related disordersAlzheimer's disease or a related dementiaAlzheimer's disease or a related disorderAlzheimer's disease or related dementiaAlzheimer's disease related dementiaAreaBiologicalCell BodyCellsCognitive DiscriminationCollaborationsCollectionCommunicationConsentDataData SetDegenerative Neurologic DisordersDevelopmentDiagnosticDiscriminationDiseaseDisorderElementsEthical IssuesEthicsEthnic GroupEthnic PeopleEthnic PopulationEthnic individualEthnicity PeopleEthnicity PopulationFamily memberFundingFutureGeneticGoalsGrantGuidelinesHeterogeneityHuman Subject ResearchInformed ConsentInvestigatorsLawsLegalNational Institutes of HealthNerve DegenerationNervous System Degenerative DiseasesNeural Degenerative DiseasesNeural degenerative DisordersNeurodegenerative DiseasesNeurodegenerative DisordersNeurologic Degenerative ConditionsNeuron DegenerationParticipantPoliciesPositionPositioning AttributePrivacyProcessPublicationsRegulationReportingResearchResearch PersonnelResearchersRiskSamplingSampling StudiesScienceScientific Advances and AccomplishmentsScientific PublicationStigmatizationStructureTechniquesTherapeuticUnited States National Institutes of HealthWorkbiologiccommon ruleconferenceconventiondata managementdata sharingdegenerative diseases of motor and sensory neuronsdegenerative neurological diseasesdevelopmentalethicalethnic subgroupethnicity groupexpectationiPSiPSCiPSCsinduced pluripotent cellinduced pluripotent stem cellinducible pluripotent cellinducible pluripotent stem cellinnovateinnovationinnovativeinterdisciplinary collaborationinterestmeetingmeetingsneural degenerationneurodegenerationneurodegenerativeneurodegenerative illnessneurological degenerationneuronal degenerationneuropathologicneuropathologicalneuropathologynew approachesnovelnovel approachesnovel strategiesnovel strategyparticipant enrollmentpatient advocacy grouppatient enrollmentracial minority groupracial minority individualracial minority peopleracial minority populationsample collectionscientific accomplishmentsscientific advancesspecimen collectionsummitsymposiasymposiumtransdisciplinary collaboration
Description preview
Project Summary
New and emerging policies, including the NIH Data Management & Sharing Policy (NIH DMS), establish
expectations that investigators share or make available data or study samples. Investigators understand and
support the value of data sharing in advancing significant findings and therapeutic goals.1 Yet, investigators
and…
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